Monday, August 13, 2012

Heartbreaking Return...

Farrah had her first spell in almost 5 months yesterday :( Her poor body seized up so fast when she wasn't aloud to go outside, she quickly turned limp and blacked out for a good 10 minutes... my heart hurts from seeing her like that, she has gone so long without one. Today she is miserable as she always is after a spell. I feel so bad for my poor baby and feel so much anger towards the doctors who say it is normal and there is nothing we can do about it. seriously, NORMAL???? last time I checked watching a toddler pass out, stop breathing, having a seizure, blacking out..... YEA NOT NORMAL! atleast it's not normal in my book. I pray for all the parents experiecing these spells for the first time, the first is always the hardest. So for all the parents out there with children that have health problems or not, here is the song I listened to after being tolled Farrah was a alpha-1 MZ carrier on top of being born with a extra reflex that was the cause of her spells...

1 comment:

  1. Hi Lisa, you have adorable kids. So sorry to hear your daughter has alpha, it's tough. I did have a lot of fun raising money for alpha-1, I just set up a first giving account http://www.firstgiving.com/mistibruderer, you can go to this site and set one up for free. Then any money will go directly to alpha-1. Then the key is getting the word out. My brothers business donated the shirts as advertising for his business and any friends or family who wanted one donated $ to alpha. The local news interviewed me after the race and it helped get more awareness for alpha! Let me know if you have any other questions! Good luck!

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